Myasthenia Gravis Insights

Specialty pharmacies: a guide for myasthenia gravis patients & carers

February 12, 2025

Exclusive Report

Specialty pharmacies: a guide for myasthenia gravis patients & carers

Exciting breakthroughs in rare disease treatments mean more patients are gaining access to cutting-edge therapies - and specialty pharmacies are playing a crucial role in delivering these medications with expert support. But what exactly do they do, and when do they come into play?

AllMyHealth’s latest guide breaks it all down - exploring how specialty pharmacies work, their expanding role in patient care, and how individuals can engage with them. Plus, we spotlight specialty pharmacies such as Accredo, CVS & Soleo Health which support MG treatment.

Available in both text and audio formats - dive in today and share with your community!

View the Full Report

The report is available for free online on the AllMyHealth website.

www.allmyhealth.io/reports

Latest Research

In a case reported by Larkin et al. (2025), a patient exhibited symptoms of both myasthenia gravis and myositis, which is muscle inflammation, without prior exposure to immune checkpoint inhibitors, drugs known to cause such overlap syndromes. The patient's symptoms included muscle weakness, eye movement issues, difficulty swallowing, and respiratory failure due to neuromuscular issues. Initial treatments with steroids and intravenous immunoglobulin provided partial relief. A significant improvement was seen with the use of rituximab, a medication that targets immune cells, and an acetylcholinesterase inhibitor, which helps improve muscle strength.

Despite no initial evidence of a thymic mass, which can be associated with myasthenia gravis, the patient underwent a thymectomy, the surgical removal of the thymus gland. The procedure confirmed the presence of a thymoma, a tumor originating from the thymus. This case underscores the importance of considering that unusual disease presentations might be due to the simultaneous occurrence of two conditions. It also highlights the need to consider paraneoplastic causes, where a tumor causes symptoms not directly related to the tumor's presence or spread.

Community News

Myasthenia Gravis UnmaskedFeb 08, 2025

Giveaway Time!!

To celebrate MG Unmasked turning 11, I am offering the chance for two people to win a $25 digital gift card. This is open to everyone!

To enter, all you have to do is like and share this post and comment with your response to this fill in the blank…MG Unmasked to you is _______

Youll have a chance to enter all weekend long. This will close at 12:01 am EST on 2/10.

Good luck, have fun and I can’t wait to read your responses! Cheers! 🥂 🎊🎉🙌🏻🍾💕

MG Foundation of America, IncFeb 07, 2025

On average, it takes a year between first developing symptoms and receiving a #myastheniagravis diagnosis, per recent studies. For some patients, it's much longer. How long did it take for you?

Myasthenia Gravis AssociationFeb 08, 2025

🎉 Happy Birthday to Keith Asaeli, a valued member of our Board of Directors! 🎂🎈

Keith, your dedication and passion for supporting the MG community inspire us all. We hope your day is filled with joy, celebration, and all the things you love most. 💙