Myasthenia Gravis Insights

This week's must-know community updates, latest research & events

New This Week

Exciting news! There is now a new section featuring clinical trials that are actively recruiting patients. This highly requested addition gives you direct access to cutting-edge research opportunities that could shape the future of treatment.

Stay informed about potentially life-changing studies and let us know what you think by replying to this email!

Top Stories

Latest Research

In a study by Sabatelli et al. (2025), researchers found that light sensitivity is significantly more common in patients with myasthenia gravis than in healthy individuals. The study involved 92 patients and 75 controls, with 36% of patients reporting light sensitivity compared to only 4% of controls.

Furthermore, those with myasthenia gravis who experienced light sensitivity also had worse disease severity and quality of life. This was quantified using the Quantitative Myasthenia Gravis score, the Myasthenia Gravis Activities of Daily Living scale, and the Myasthenia Gravis Quality of Life-15 questionnaire. The findings suggest that light sensitivity could be an important factor to consider in the management and treatment of myasthenia gravis.

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

Community News

MG AssociationMyasthenia Gravis AssociationMar 11, 2025

#TuesdayTruth 💬

"I really hate how it seems like I am faking because some days I can talk very well but the next day I can't. Some days I can read, but the next day I can't because of double vision. However, variable muscle weakness goes against 'common sense' and what we use as criteria for when someone is faking it. Very unfair, I even doubt myself sometimes! Why can I talk today but not yesterday? Or this morning but not this afternoon?"

Florence’s words remind us of the unpredictable nature of #MyastheniaGravis and how it can be hard to explain to others – and even to ourselves. The fluctuating symptoms are real, and the struggle is valid.

The beautiful art featured today is also by Florence, sharing her unique perspective and experience with us. Thank you for opening up, Florence! 🎨💙

Myasthenia Gravis Association Post
MG Foundation of America, IncMG Foundation of America, IncMar 09, 2025

Raise awareness for all those living with an autoimmune disease. Share this post or your story on social media using the hashtag #autoimmuneawareness!

Myasthenia Gravis UnmaskedMyasthenia Gravis UnmaskedMar 12, 2025

I’m home again and trying to rest and recover. Still not super great but better than when I went it.

Thank you all for your patience and sweet messages and comments checking in on me! It has meant so much in this process!

I was going to push to come back but I think it’s best to let myself wait. If that changes, I’ll let you know.

Still just a message away if you need anything!

All my love, Rebekah 💕

Upcoming Events

MAR
13
Tech-infused mini golf MG Association • Kansas City, MO    In Person
MAR
19
Virtual Crafting Meet-Up Myasthenia Gravis Association • Kansas City, MO    Online
APR
05
Myasthenia Gravis Community Gathering MG Foundation of America, Inc • MA    In Person
MAY
18
Volunteer for MGA Showdown MG Association • Kansas City, MO    In Person
MAY
18
MGA Awareness Event MG Association • Kansas City, MO    In Person

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