Myasthenia Gravis Insights

This week's must-know community updates, latest research & events

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Top Stories

Inebilizumab Eases Symptoms in AChR+ Myasthenia Gravis Patients
Treatment with inebilizumab improves daily functioning for people with myasthenia gravis who have antibodies against the acetylcholine receptor, showing sustained benefits over a year.
Read More →
American Society of Gene & Cell Therapy’s Empowering Patients 2025 Summit Recap
Read why patients and caregivers are vital partners in research, clinical trial awareness empowers decision-making, regulators value patient voices, and addressing manufacturing hurdles is crucial for access.
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Immunovant Announces Positive Results for Batoclimab in MG
Researchers found that batoclimab significantly improved daily activities for people with myasthenia gravis, especially at higher doses, showing potential benefits in managing the condition.
Read More →

Latest Research

Recent research has explored the use of hematopoietic stem cell transplant (HSCT) in treating severe, refractory myasthenia gravis. This approach is being studied for its potential to improve outcomes in cases where other treatments have not been effective. The study focuses on successful HSCT applications in such scenarios, indicating a growing interest in innovative treatments for this condition.

The study by Li and Pike-Lee (2025) highlights the importance of exploring alternative treatments for refractory cases. While the details of the study are not fully disclosed, it suggests that HSCT could offer new hope for managing severe forms of the disease. Further research is likely needed to fully understand its potential benefits and limitations.

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:
A Phase 2 Study to Evaluate DNTH103 in Adults with Generalized Myasthenia Gravis (MAGIC)
Study Type
Phase II
Location
14 countries
Age Range
18 - 75 Years
Enrollment
60
KYSA-6: A Study of Anti-CD19 Chimeric Antigen Receptor T-Cell Therapy, in Subjects With Refractory Generalized Myasthenia Gravis
Study Type
Phase II
Location
2 countries
Age Range
18 - 75 Years
Enrollment
20
A Study to Test How Safe Pozelimab and Cemdisiran Combination Therapy and Cemdisiran Alone Are and How Well They Work in Adult Patients With Generalized Myasthenia Gravis
Study Type
Phase III
Location
21 countries
Age Range
18+ Years
Enrollment
335
A Prospective Natural History and Outcome Measure Validation Study of Congenital Myasthenic Syndromes
Study Type
Observational
Location
Maryland
Age Range
6 Months - 99 Years
Enrollment
75

Community News

MG Foundation of America, IncMG Foundation of America, IncMar 21, 2025

What do you wish others knew about myasthenia gravis?

Myasthenia Gravis AssociationMyasthenia Gravis AssociationMar 22, 2025

🚨 Insurance Premium Assistance for Myasthenia Gravis! 🚨

The PAN Foundation has launched a new health insurance premium financial assistance program for individuals living with Myasthenia Gravis (MG)! Eligible patients can now receive up to $2,600 to help cover out-of-pocket health insurance premium costs.

💙 This program is in addition to PAN’s existing MG copay assistance fund, helping to ease the financial burden of managing this chronic neuromuscular condition.

🔹 Who qualifies?

✔️ Receiving treatment for MG

✔️ Have Medicare insurance covering a qualifying medication

✔️ Meet income eligibility (≤500% of the federal poverty level)

✔️ Reside & receive treatment in the U.S.

🔹 How to Apply:

📞 Call 1-866-316-7263 (Mon–Fri, 9 AM–5:30 PM ET)

💻 Apply online 24/7 through the PAN portal

🔹 More Support Available:

✅ MG copay assistance

✅ Transportation grants for medical visits & wellness activities

✅ Connection to patient support organizations

📢 Don’t miss out! Learn more and apply today: https://www.panfoundation.org/apply-and-manage-grants/

#MyastheniaGravis#MGStrong#FinancialAssistance#HealthcareSupport#PANFoundation

Myasthenia Gravis Association Post

Upcoming Events

MAR
31
National Patient Conference MG Foundation of America, Inc • Westborough, MA    Online
APR
01
Mini Golf & Connection Evening Myasthenia Gravis Association • Kansas City, MO    In Person