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Financial Strategies for Living with Myasthenia Gravis in the US: A Guide to Long-Term Planning

Liam Ball
January 16, 2025
Exclusive ReportFinancial Strategies for Living with Myasthenia Gravis in the US: A Guide to Long-Term PlanningAllMyHealth, the platform that supports rare disease communities, has written a report addressing the financial challenges faced by individuals with Myasthenia Gravis (MG) in the US. It offers strategies for long-term financial planning, including accessing support from specialized organizations, utilizing government benefits like SSDI, SSI, and Medicaid, and exploring private disability and life insurance options. The report also highlights the importance of budgeting, building an emergency fund, managing medical debt, and engaging in legal planning to protect assets. View the Full ReportThe report is available for free online on the AllMyHealth website. www.allmyhealth.io/report ![]() |
Top StoriesStem Cell Transplant Shows Promise for Treatment-Resistant MG PatientsA study shows that stem cell transplants can be an effective treatment for myasthenia gravis patients who do not respond to other therapies. This approach has improved symptoms and quality of life for some patients with treatment-resistant myasthenia gravis. Read More →Muscle Weakness with Twins: A Personal StruggleThe author shares a personal experience of living with myasthenia gravis, highlighting how muscle weakness affects daily life and how having twins exacerbated the symptoms. Managing both the condition and parenting challenges required significant adjustments and support. Read More →Living with MG: Feeling Isolated? You're Not AloneLiving with myasthenia gravis can feel isolating, but it's important to remember that many others are going through similar experiences. Connecting with support groups and sharing personal stories can help alleviate feelings of loneliness and foster a sense of community. Read More →Traveling to Paris: A Dreamy Adventure Despite MG ChallengesTraveling to Paris can be a dreamy adventure even with myasthenia gravis, as long as you plan carefully and take necessary precautions to manage your symptoms. Here are some tips to help you enjoy your trip while managing your condition. Read More → |
Latest ResearchRecent studies have explored innovative treatments for myasthenia gravis (MG) with promising results. Silvestri (2025) reported on the use of efgartigimod, an Fc receptor inhibitor, showing significant improvement in daily living activities for patients with generalized MG. This treatment also allowed for a reduction or discontinuation of other medications like prednisone. |