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In a recent study by Song et al. (2025), four patients with generalized myasthenia gravis (gMG) were treated with a new therapy called telitacicept over an 8-week period. This treatment targets specific molecules involved in the immune response. After treatment, all patients showed significant improvements in their symptoms and quality of life, as measured by three different scales. These scales assessed disease severity, impact on daily life, and overall quality of life.

Furthermore, the study reported a decrease in certain immune cells and antibodies associated with gMG, suggesting that telitacicept effectively modulates the immune system. Only one patient experienced a mild side effect related to the injection. While these initial results are promising, Song et al. emphasize the need for more extensive research to confirm the benefits and safety of telitacicept for a broader patient population.

Community News

Myasthenia Gravis UnmaskedMyasthenia Gravis UnmaskedFeb 05, 2025

Tonic water can cause significant issues and pose a serious risk for MG patients.

Quinine is the culprit:

“The active ingredient in tonic water that can affect myasthenia gravis patients is quinine, which has muscle-relaxant properties that can worsen muscle weakness.

The use of quinine is contraindicated in patients with myasthenia gravis, as quinine has neuromuscular blocking activity, and may exacerbate muscle weakness.”

Coded as a Major Potential Hazard.

It is also recommended that gin and tonic and other mixed drinks that contain tonic water be avoided, unless otherwise advised.

Myasthenia Gravis Unmasked Post
MG Foundation of America, IncMG Foundation of America, IncFeb 05, 2025

Rare Disease Week is coming up later this month. Hear what's new in legislative advocacy - check out our update. Then find out how you can take action to make a difference!

https://ow.ly/wHeQ50UU1UA

MG Foundation of America, Inc Post

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